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Support Our Work Today!

Your donation today supports programs to encourage timely and complete genetic carrier screening for Canavan and other Jewish genetic diseases.

$8,103 raised

$10,000 goal

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Funding Education and Research Since 1992

The Canavan Foundation was founded in 1992 by the parents and friends of affected children. Its mission is to promotion preconception carrier screening for all parents-to-be and to support medical research. Current efforts include a website with informational videos, a social media campaign, comprehensive doctor, patient and synagogue education programs, and support for researchers undertaking a natural history study of the disease and piloting gene replacement therapy. For more information go to